Conditions

Inherited Metabolic Disorder Societies:

 

SSIEM.ORG

Society for the Study of Inborn Errors of Metabolism: The International charity organisation that conducts research and promotes exchange between professional workers who are interested in metabolic disease. Website

 

BIMDG
British Inherited Metabolic Disease Group: Promotes the improvement of the provision of services for patients with inherited metabolic disorders. Website


News & Interest:

 

diabetes test

Weight Loss and Exercise for Diabetes

 

About 90% of people with diabetes suffer from Type 2 Diabetes or what is known as “obesity-related diabetes mellitus.” Additionally, statistics show that nine out of ten people diagnosed with diabetes are overweight. Read more...

 

Support Groups.

 

The MSUD Family Support Group
Is a non-profit organization for those with MSUD and their families and includes health-care professionals and others interested in MSUD. Parent interest in support and information prompted the first MSUD Symposium for families and professionals in 1982.
http://www.msud-support.org/index.html

National Coalition for PKU & Allied Disorders
P.O. Box 1244
Mansfield, MA 02048
Contact Person:  Trish Mullaley
Phone:  (877) 996-2723
E-mail:  National Coalition

National Society for Phenylketonuria
http://www.nspku.org

IBS TheGutTrust
http://www.theguttrust.org/

IBS Tales
http://www.ibstales.com/

Alergy UK
http://www.allergyuk.org/

(NACC) The National Association for Colitis and Crohn's Disease
http://www.nacc.org.uk/content/groups.asp

Diabetes UK
http://www.diabetes.org.uk/

MUMS - National Parent-to-Parent Network
http://www.netnet.net/mums/

Climb (Children living with metabolic disease)
http://www.climb.org.uk/

SSH-Nutrition
SSH-Nutrition-Forum